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| External Links The NSPKU cannot be held responsible for the content of external web sites. Other organisations Manufacturers Members web sites Everyclick The NSPKU makes every effort to ensure that the sites listed below are relevant to PKU, suitable for a general audience, and that the links are correctly identified. However, these sites are not under the control of the NSPKU and therefore responsibility for their availability and content lies with their authors. If you find that any of the links below consistently fail to work, please email us and we will amend or remove the link.
Join our Email Mailing ListWe have an email mailing list primarily set up to notify dietitians of news relating to updated information on this web site, difficulties obtaining products or mislabelled products. Anyone is welcome to join. We anticipate sending out emails approximately once a month so we will not be filling your inbox with junk mail. It is also easy to unsubscribe if in the future you no longer want to receive the emails. To join send and email to nspku_news-subscribe@yahoogroups.co.uk Alternatively click here and join on-line. We are aware that some NHS IT systems are not letting our news emails through as they see them as spam. If you have applied but have not received an email of confirmation, please contact your IT support and ask them to let through emails from nspku_news@yahoogroups.co.uk; on behalf of; nspku_mail [yahoo@nspku.org] If not you could try a home email address. If all else fails, please contact webmaster@nspku.org
Chat forumWe have set up a chat forum, primarily for contact between teenagers, and adults with PKU. The idea is so that they have the opportunity to ask questions they may feel awkward asking of family, doctors, or dietitians, but also to trade ideas, recipes, and even experiences. This is on an external site, operated as a message board where you will have to set up an ID before you can post a message. Disclaimer: The opinions, and information displayed on the chat forum are not the views of the NSPKU. We will exercise editorial control over information that appears on the site, and will remove any offensive material, but will try to allow all that use the site to freely express their opinions.
Emergency Contact details for unplanned pregnancy can be obtained here |
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